No transfusions needed today, as Gary's blood tests were stronger today than in several months!
In spite of the very encouraging lab tests, Gary is really carrying a heavy burden of discomfort from the swollen nodes in his abdomen. Still difficult walking and sleeping, and eating is something of a chore, even with delicious lemon pie in the fridge.
On the personal side of things, we are still on a high after the lovely visitors this past weekend. Natalie and Gordon stopped by for a final farewell on the way to their Air Canada flight home. In the evening, we again roosted for an hour on a bench in Riverside Park.
On the medical side of things, Gary saw the radiation doctor today at MSK. That's Dr. Yahalom of my previous post. He seems to have a lot of say in terms of getting his patients what they need, quickly if necessary. That is reassuring. Dr. Yahalom examined Gary's lymph nodes, from head to toe, and announced the new, modified radiation treatment plan: CT scan tomorrow; then radiation for two days, then a break, then another two days next week, and then two the following. All subject to change, with blood test throughout to monitor everything.
Gary continues to be denied the medicine his doctors want to give him. The two drug companies in question have refused our requests for compassionate access. More on that in a future post.
Gary continues to be denied the medicine his doctors want to give him. The two drug companies in question have refused our requests for compassionate access. More on that in a future post.
Miss you both already. The weekend went so fast, but it was great to be able to spend some time with you. Hope Gary feels up to some lemon pie soon. xox
ReplyDeleteGary, in the midst of the CT Scan, treatments and difficulties today, I hope you have a moment or two to reflect on how loved you are by all your friends on this, your birthday. Susan and I send you extra virtual hugs today, and hope to see you this weekend!
ReplyDeleteGary, Happy Birthday!
ReplyDeleteBrian suggested that I post a photo of Penny the (very bad) puppy, but unfortunately my tech skills have not yet reached such an advanced level. Glad to hear your lab results have come back somewhat better. Keep the updates coming. Always thinking of you both xoxo
Oh today is your birthday! I remember that from when I was with you and you had repeated the date many times to the nurse..... and I told myself to remember...... Ok, so I cheated by seeing the post before this one -- but, I'm still wishing you a happy birthday.
ReplyDeleteTO YOUR HEALTH!
Love,
Joanie
What is this? A birthday? HAPPY BIRTHDAY! (It's still the 27th in BC!)
ReplyDeleteGary, despite all the continued discomfort with those nodes, it sounds like you are really on your way to that transplant. Your doctors sound so wise, caring, and flexible ~as well as being versed in the very latest. With them on your team and your friends and family all rooting for you, that goal is in sight as you start this new year in your life on an upbeat note. If there is anything we can do to petition those recalcitrant, inhumane drug companies and perhaps sway them in their decision to deny you the much-needed medication, please let us know at once.
ReplyDeleteXOXO
Andrea
Beatifully written Andrea! Ditto on anything we can do to petition the drug companies? Im in.
ReplyDelete